Marco: Durch ALS habe ich viele bemerkenswerte Menschen mit der selben besch… Krankheit kennengelernt. Den meisten fühle ich mich nach kürzester Zeit sehr verbunde. Warum? Ich denke Schicksal verbindet. Einer dieser Mensch ist Steffen Kähler. Seine Geschichte erinnert irgendwie auch an meine. Er ist Familienvater und Ehemann, stand mit beiden Beinen fest im Leben. Bis ALS kam. Er versucht genau wie ich auf diese Krankheit aufmerksam zu machen und hatte den Mut an die Öffentlichkeit zu gehen. Sein YouTube Kanal bewegt und rührt mich gleichermaßen. Er erzählt trotz immer schlechter werden Stimme über sein Leben, und dass immer noch mit einem großartigen Humor. Ein Blick lohnt sich. Finden könnt ihr ihn unter Brainstillworking. Er hat sich entschieden ins Hospiz zu gehen, warum könnt ihr auf seinem YouTube Kanal erfahren. Ich habe aller größten Respekt vor seiner Entscheidung, und wünsche ihm alles Gute und weiterhin viel Kraft. Wie es im ergeht könnt ihr hier lesen und anschließend im Video unten anschauen.
Steffen: Letzte Woche war der Umzug ins Hospiz, was hatte ich Angst davor aber mir geht es gut, hätte ich so nicht erwartet. Klar fließen täglich Tränen, aber weniger weil ich hier bin!!, sondern wg meines Schicksals. Mir werden hier die Wünsche von Augen abgelesen, die kümmern sich super um mich. Meine Frau entlastet es dramatisch, das ist gut. Wir sehen uns drei Mal pro Woche. Ich kann sogar mit Fahrdienst Sonntags nach Hause. Was soll ich sagen, ein positiver Ort für mich…. Körperlich geht es kacke, Sprechen wird immer mehr zu einem echten Problem, was für eine Katastrophe.
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Steffens YouTube-Kanal ist echt beeindruckend. Vieles, was er berichtet, kann ich aus eigener ALS-Erfahrung nachvollziehen.
Sein Entschluss, in ein Hospiz zu gehen, nötig mir großen Respekt ab.
Steffen ist am 02.03.2021 verstorben.